NOV '12 - My 20th birthday, another bad review, compression garments and more surgery on the cards... (graphic photos!)

 So November was actually quite eventful and I am very thankful I kept a diary until I started this blog so I can back date everything so accurately!

 Joss now has another motorbike as it was written off in the crash. I feel very anxious about it, on one hand I don't want the driver of that car to stop me from getting back on a motorbike on the other it absolutely terrifies me to the core. He needs transport to get to work and has every right to continue riding especially as none of this was in any way his fault. But I am terrified that he will be injured or killed, if you get hit on a bike you have no exterior to protect you as I experienced. But for now he texts me whenever he leaves/arrives somewhere and it gives me some peace of mind.

In November quite a few things happened actually -

1. On the 3rd me and Joss took a trip to the Sealife center in Birmingham - The first and last time we went anywhere similar was the safari park on the day of the collision and I did feel strange about it. But we got there and back ok and luckily they had good wheelchair access there so we could enjoy it!
2. On the 7th I finally got the right size wheelchair! - In hospital I was given a wheelchair which was too wide for me and promised a smaller one, I was discharged with the large one but when I got home found it barely fit through our door frames. We rang up but they said they couldn't change it. This is when the fact it was someone else's fault is of benefit, because we have a legal claim going on I have an amazing lady who's job it is to make sure I have things I need and she ordered me a brand spanking new wheelchair that is my size and can still fit my special pelvic support cushion and here it is!  

MY wheelchair!

3. On the 5th (I realize I have gone backwards here oops!) my injuries caused another injury!.. - In the crash I dislocated my collar bone, when making a flipping pot noodle of all things it gave way and the freshly boiled kettle poured over my leg. The left, smashed up leg to be precise. It was excruciating. Imagine doing that and not being unable to jump up. If I hadn't of had this accident I would of gone straight to A&E but I thought I would be wasting their time and I'd had so much more serious burns. When I showed my scar therapist she took me straight down to the nurse clinic (It pays to have contacts haha) and they dressed them one part was actually second degree. You literally couldn't make this stuff up, nearly die in horrific accident - get discharged - shoulder injury gives way and causes more burns!

                                               This is actually the kettle burn 2 weeks after I did it...

4. On the 16th I had some of my scalp cut off with scissors... - So I was currently seeing the nurses once a week for dressing changes on my back (burn/skin grafts), leg (water burn) and head (scalped by road). Today went as usual until my mom decided to query why I still had a HUGE scab on my scalp injury nearly 3 months on. I have put a picture on but basically the bald patch you can see was scraped off down to my skull by being dragged along the road (my helmet was driven over and smashed). The nurse decided to pull the scab off and have a look. Then I had several nurses all mmm'ing and ahh'ing around my head, apparently there was a big lump under the scab and they needed to cut it off. YES cut it off with scissors while I sat there YES it felt exactly as you would think! Then they needed to burn the stalk down with silver nitrate sticks, I've had them used on my back but that burn went so deep I couldn't feel them doing it, this time I could and it REALLY hurt! MORE cream and more dressings!

My head before scab removal. The pink area was mostly open down to my skull in the crash and all the uneven short hair was cut by the paramedics and then shaved in theater.

5. The 22nd was my birthday and a trauma review - Neither went well, I went for my review had Xrays and then saw a doctor It didn't go so well, they still aren't very happy with my pelvis or leg growth and have only agreed to me starting 50% weightbearing on the right leg and still 100% not on the left (which basically means I still cant even stand up. Then my mom took me shopping but it was not enjoyable. I couldn't get around the shops easily in my chair, I couldn't buy clothes I used to like because I need them to be comfy and I'm extremely self conscious of how I look now. I wear a scarf on my head everyday to cover up the hair removal and wound/scar. I feel very ugly and nothing like myself. I had all of my piercings taken out, half of my long hair cut off, have gained weight since leaving hospital but my legs are empty from muscle wastage and I have a lot scars.

6. On the 24th I was fitted for my compression garment and went out with friends for my birthday -  I have to have a compression top to help with my burn and other scars. It is extremely tight and does up with a zip, it basically tries to flatten the scars as much as possible and it covers my shoulder scar (skin removed even through leather jacket by being dragged down road), both of my lung drain scars, my full thickness burn on my back (melted to the cars exhaust) and my hip (similar to shoulder but with added stictches!) it's not comfy but it has to be done! After that I went into Birmingham with Joss, his sister and her boyfriend at the time to see the German Christmas market which was really nice. Then we met a group of friends for a meal in the mail box in Birmingham to try and celebrate my birthday. First off we arrived to a gormless waiter 'you can get up a step can't you' YES THATS WHY I ASKED FOR A WHEELCHAIR ACCESS TABLE! So I had to be lifted up a step to our table which was extremely embarrassing and degrading. THEN when I asked about toilets I was told it was downstairs so had to be lifted back down the step and use a tiny staff lift   platform to go down and back up. It was frankly horrible.

7. On the 26th I saw my burns consultant - I'll keep this one short! My compression garments are being altered and then posted to me and it is now official that I am going to need another 4 or 5 operations on my burns including my back and head but that wont be until the skin has healed more to lower the infection risk.

                                                                             Here I am in my lovely compression garment!

So it was a busy month and not really in a good way! I hope that didn't bore you to death and the photos weren't too gross!

DRIVE SAFE, George xxx

OCT 2012 missing hospital - what the hell?! + How I shower etc with no downstairs bathroom...

  So I spent an agonizing 6 weeks in hospital desperate to get home only to get home and wish I was back there...
You're all probably thinking 'what the hell?' 'Is she crazy?' 'why would anyone want to be in hospital?!'. And it is extremely hard to explain but this blog is for me to keep an honest accurate account of this accident and my recovery and this is how I felt.
   Don't get me wrong before this I never sat at home thinking 'I really wish I could be in a horrible accident' and while I was in hospital I did not enjoy it. But I didn't really 'get' what being home would be like...I didn't come home to my bedroom I had to move into our front room. To get into the house I have to use ramps so I'm a prisoner in my own home unable to enter or leave alone. I cannot go upstairs at all. We have no downstairs bathroom, this means as a 19 year old female I have to have a commode chair in my fake bedroom which my mother has to empty. The ONLY reason I'm talking about every aspect of this horrific crash and it's results (even the most embarrassing and soul destroying) is because I think it's important for people to see how this driver's dangerous choices have ****** up my life. To shower I have to be taken to my parents friends house as they have a disabled access downstairs shower. This means I can only shower twice a week and involves packing two cars with me, my ramps, my wheelchair, my transfer board, commode chair (doubles as shower chair) and clothes, wash stuff and towels.   I have to be wheeled in up my ramps through their living room, mom puts the chair in the shower base puts my wheelchair next to it, I transfer with the board, she puts the towels ect. out and leaves. I shower as best I can and then text her to come and do my back dressing and reverse the procedure to go home. YES it's good that they can even offer me showers at their house but it's degrading and exhausting.

                                          Ramps to get in and out of my front door (can't use backdoor)

Anyway back to missing hospital. In the middle of October I had my first of many 'trauma reviews', these involved me going to the QE to have xrays and a meeting with my trauma/orthopedic/bones consultant. From  day 1 I have been completely strictly NO weight bearing this means I cannot put ANY weight through EITHER of my legs and must use a wheelchair and transfer boards. I was not even allowed to be rolled onto my right side because I had a big fracture in my hip socket. At this review I spent hours waiting for xray and then a meeting with one of 'Mrs bones consultants' registrars (doctors). Just to receive BAD news...still NO weight bearing at all. I have about 7 breaks in my pelvis and hip socket, and my left thigh was so badly snapped they had to remove a section before plating it and it had not began to grown back and the pelvic fractures had not begun to heal.

It was the last straw really. I felt SO depressed - why had this happened? why me? why didn't the grafts work? why did I have to use a fake toilet when the person who did this to me was fine? I missed hospital, at least in hospital I could use a toilet now I could transfer. I really bonded with some nurses which is a weird thing because you spend so much time with them and then just leave. And you know what people care more when you're in hospital, I had been inundated with cards and flowers (which sadly died before I got home!) and now I needed visitors more than ever now I was living in my own version of hell no-one really came round.

A few more positive things from my time in hospital...

  So I looked through all my posts detailing my time in hospital and while trying to get all the horrible details in I missed the 'good' times where little things lifted my spirits so here's a little list!

• Joss (my boyfriend and the rider of the bike) visited me EVERY single day without fail. He walked to the train station in our town caught the 25/30 minute train to Birmingham and walked to hospital everyday and then back again. 
• My mom was allowed to come in at 10am every morning due to my age and the nature of it all so she did. Got up early every day drove 40 minutes to hospital and sat with me until 2 when Joss usually came, drove 40 minutes back home and a lot of days the came back for evening visiting! She helped me with going to the toilet and even sat there while I slept.
• As soon as I was able to get into a wheelchair Joss was thrilled and took me off my ward any day I was feeling up to it. Pushing me round, bag of wee on one side of the chair, box sucking gunk out of my back on the back of the chair all with his arm in a sling! Which meant I could go outside and get some air for a while.
• Joss's parent's, My step-dad, younger brother, and older brother and his wife as well as  friends - Pete, Sian, Rhianna, Beckie, Ryan, Charlotte and Naomi also came to visit me once, twice or a few times. (Hope I havn't missed anyone out!)
• The food was absolutley RANK and I lost so much weight from the trauma and trying to fight infections my mom used to sneak my dinners back out onto the trolley and bring me toast in the mornings and mcdonalds on good evenings. She even went to the shop and brough baguette, cheese, butter and a bottle of salad cream when I was craving a real sandwich!
• Joss brought me pizza wrapped in tin foil and even surprised me with a subway one of the days!
• I also discovered Branston pickle with sticks of cheese in the hospital WHsmith which is one good thing to come from this!

All of these things made an otherwise horrific, scary and painful hospital stay more bearable!

27th September - Discharged from hospital...

I struggle to start all of these posts but this one is especially hard. 'Discharged' sounds so final but it was just the beginning really.
I had to see the doctors and they explained that we were keeping the wound/burn clear of infection with the dressings and letting it heal over because the skin grafts hadn't worked. Then they would look into more surgery in the future. I would be coming back to the Queen Elizabeth pretty much every week as I would have appointments with -

• Nurse clinic for dressing changes 
• My Burns consultant 
• My trauma&orthopedics consultant
• Xray's - Pelvis, hip, femur (thigh), wrist
• Physiotherapy
• Psychotherapy
• My Liver consultant
  
                                                       My new second home QEHB
  

I spent the day in hospital having blood tests and waiting for my prescriptions to go through for my medications to take home. I was eventually discharged at about 5pm. Mum helped me into some horrible tracksuit bottoms and a jumper and shoes! Pretty much hadn't worn clothes or shoes for 6 weeks.
I then went round to give cards to those I wanted to thank. I left one at the burns unit and then Joss took me round to Critical care unit C, the intensive care ward I was on. I had a card for the nurse I had on the Tuesday (the day I woke up) and the nurse I had on the Wednesday. It was scary going in there again because I didn't know what it looked like before I was either in a coma or barely conscious. On there you have one to one nursing and the state I was in I got very attached to those nurses. Then I went up to 412 my main 'home' for my time in hospital. I had a collective card and chocolates for the staff and one for my favourite nurse. It's hard to explain the attachment and not everyone who's been in hospital will have it, I think the extremely vulnerable mental and physical state I was in and my age meant they were more than medical carers to me.

I had my first post hospital cry when we got to the car, I realized I needed to pee and if I waited til I got home I would have to go in the commode in my new downstairs bedroom. Kindly Joss and mom took me back to hospital to use that toilet but it was sinking in what being at home was going to be like. Joss made a status 'Georgia's coming home!' it got 63 likes, but I wasn't happy to be home. I cried when I saw the ramps to get inside, I cried when I went into our beige dining room and there was a double bed with a back support a special table and the dreaded commode. I cried when I had to use the commode. Joss tried his best and got some scarves and photos from my real bedroom to try and make it better, I must of seemed so ungrateful but I was absolutely heart broken. I didn't know who I was anymore.

                                                  Not the actual commode I cant face that!

                                       The same luxury back support I have to have on my bed...

DRIVE SAFE, George xxx

Wednesday 26th September - First real shower!!!

   So as I have said many times before my 'washing situation' was weird and always changing...
Briefly -

• Intensive care - Rolled and wiped down to try and prevent bed sores. Agony.
• 1st 3 weeks on Trauma ward - Rolled and bed bathed daily by nurses.
• 4th Week on Trauma ward - Showered on special chair daily to clear burn infection.
• 1st week and a half on Burns Unit - Hair washed over special bath by nurses and only allowed to wash at sink to not get graft VAC dressing wet. 

So Monday My graft was again confirmed failed but they decided to try and help the wound heal with dressings. Wednesday  morning my nurse came in and asked if I wanted a shower?..erm YES!

She helped me onto the commode toilet/shower chair and wheeled me into 'my' bathroom (I was allowed to use the treatment bathroom as mine because of the wheelchair). Wheeled me into the far corner where the shower is, helped me undress and took my backdressing off, wrapped my donor site dressing in a bin liner and...LEFT!
First time in 6 weeks I was in a bathroom in the shower alone, no cast wrapped in a bag! She left all my wash things on another chair next to me and I had to figure out how to do it all myself! It was a lot harder than you probably think, trying to wash my 'hair' (the half left) without touching the big skinned section of my scalp and my shoulder injury's. I was desperately trying to avoid touching my burns and I couldn't bend down or wash the backs of my legs but it was AMAZING!


When I was done I pulled the nurse cord and she came back, followed by a team of doctors. She asked them to wait outside while she came through the privacy curtain and helped my dry and dress my bottom half. Then I had to hold a towel over my chest so the doctors could come and look at my back. After my mum arrived and a conversation with her the decided if she felt confident to do my infection control dressing I could be discharged tomorrow! I will add she was allowed to do it because she is a midwife and so understands how to perform infection control and I would be coming in every week to see the nurses here anyway. So they showed her exactly what to do and I eventually went back to my bed very excited indeed!

Monday 24th September - Graft review...

   Monday 24th September 2012 I woke up nervous! I was having my second skin graft reviewed today. The first one as I explained here, was traumatic first I was told it had taken then I was told it had completely failed, was massively infected and I needed another one as soon as the infection was gone. My burns consultant came to see me the day before and told me that if it had failed again I might be able to go home for a few days but then come back for another graft.
   Even though I had gone through ALL of this and one failed graft I still thought 'It wont be failed again, it wont happen to me'. I was given lots of morphine and sat up and my Vac dressing taken off, the curtain around my bed was shut and I had to wait for my consultant. My mom was texting me trying to find out what was happening, this was a BIG event. The outcome of this affected my future scarring, whether I could leave hospital, Operations...
   Eventually Mr V arrived with a bundle of medical students and junior doctors. A nurse came in to hold my hand while he looked at my back. It was silent for about a minute and then I heard him say 'where is the graft?..' I felt sick, completely devastated. After some discussion between themselves he asked them all to leave so he could speak to me privately. (something I really value in this consultant) He looked sad, he specifically chose to take over my care and knew what I'd been through and how much I wanted to go home. He explained that it had almost all failed again, I asked about having another but after a chat with my nurses and their colleagues they decided I had to stay in a few more days but we'd treat the burn with dressings soaked in beta-dine again and try and avoid another graft. I was happy because I wanted to go home and couldn't face another gruelling skin graft operation but it meant my scarring would be worse. It also meant that again my body had failed to accept its own skin, it may be silly but that in itself is hard to accept.
   Now I had to have the dreaded staples out again, I was going to attach a photo of a similar graft but thought you may prefer just the staple instruments for less gore!

I wont ramble on about how much having the staples out hurts again but Just think - big full thickness burn, open wound, actual staples being pulled out...The only benefit to having such a severe burn is that it has burnt through everything including nerves so I could only feel the ones around the edge being taken out not the ones imbedded in the burn!
DRIVE SAFE, George xxx

 

Sunday 23rd September - Cast off left in A&E...

    You may have read in my earlier posts that my broken wrist wasn't noticed until almost 3 weeks after the accident when I couldn't use it to get into my wheelchair. Despite the fact that I could of made the break worse and the pain it was kind of a good thing because it meant they only left the cast on for 2 and a half weeks.
    On Sunday 23rd September the nurse said I would be having my cast taken off 'later'. It's an amazing hospital but when I had to have something done it generally took hours if not days and involved being wheeled around in the bed or chair trying to end up in the right place. I was even abruptly taken out of the toilet on the trauma ward with my nurse trying to keep my dignity and rushed to a heart scan that wasn't in any way for me!
    Anyway as usual it happened during visiting time! My friends Beckie and Ryan came to afternoon visiting with Joss that day. I think I had about 10 minutes with them before a porter showed up, most porters I had were lovely but some were not so. They showed up with a patient chair (picture below), I pointed out that I have my own actual wheelchair as I cant stand or walk, he looked annoyed. I couldn't of sat in his chair even if I wanted to as I have to use a special cushion to keep my pelvis in place! (cringey I know)

He went off to talk to a nurse and came back for me with my notes, he got me to carry them (pretty hefty pile I can tell you!) and Joss came with me. I told Beckie and Ryan I'd be as quick as possible and got taken away. The porter clearly had no idea where to take me and we ended up going through Resus and A&E, this was quite traumatic for me. Luckily there was no-one being rushed in or anyone in a bad state but it affected me a lot. Knowing I'd been rushed in from the helicopter people shouting things like 'female, 19, motorbike vs car....' I wouldn't of been taken into the a&e people wait in with broken ankles and lego in their nose but it was still upsetting. The porter pushed me into the room where they take casts off/put casts on said something to the poor doctor/nurse and buggered off. There was a woman in the room getting a cast luckily she wasn't bothered that I was in there! The man was trying to sort out why I was there, everyone (staff) was confused and shocked that I was an inpatient and had been brought down to a&e let alone left there! Thank god joss came with me! We had to go and wait in the corridor with other people waiting to be seen. I felt very self concious, I was sat in my wheelchair in my pjamas wrapped in a blanket. Obvious wounds and half my hair shaved off with a huge dressing on my head, with everyone else there like in normal clothes. 

Eventually the nurse took me to have my cast off, they literally use a round electric saw (I'd never broken anything before this) she said though that they couldn't x-ray it, I'd just have to put my splint on and wait back on my ward for xray. 

Guess what, that Xray was done at evening visiting time! Luckily I didn't need to have a cast put back on!

DRIVE SAFE, George xxx