Major catchup!...

I always sit down to update this blog and then end up not writing anything so now I have loads of things to write about! 
I'm going to try and keep each thing short and sweet and rambling to a minimum..

On the 5th December (was that really almost 4 months ago?!) I jetted off to Budapest with Joss and two close friends for another 21st birthday celebration, I mean if you can't go clubbing you have to have two trips right? It was a fantastic few days but I did struggle with the wheelchair a little and had some low times thinking about how different my 21st should of been. Although the hostel was pretty wheelchair friendly and I managed to get to the bathroom there with my crutches or sticks. All in all it was great to get away with some of my biggest supports and best friends.

The trusty chair in it's 3rd country!

 

On the 23rd December I moved back up to my old upstairs bedroom after 16 months sleeping in the bedroom my parents had to make for me in our front room, in order for me to come home from hospital. I started off in that room barely able to transfer from my wheelchair into my bed with a board and with a commode in there, but it was still hard moving back upstairs. After I first went back into my room I decided to have it painted a different colour to make it easier but it still didn't feel like 'my room'. I think it's because I feel so different from the 'old' me now and I probably subconsciously thought everything would be back to normal when I went back. I'm slowly accepting I won't be exactly the same ever again, no part of my life will be the same but that doesn't have to be a bad thing. 

On Christmas eve I had an appointment with my burns and plastics consultant to review my scalp surgery (read about that here), at the review it was decided that I will have the surgery repeated to improve the size further and hopefully that will help with the pain and pulling of the hair around it. I also had some painful steroid injections into part of my shoulder scars that are hypertrophic in the hope it will break down some of the tissue and help with the pain. Most of my scars are hypertrophic..

''A hypertrophic scar is a cutaneous condition characterized by deposits of excessive amounts of collagen which gives rise to a raised scar, but not to the degree observed with keloids.^[1] Like keloids, they form most often at the sites of pimples, body piercings, cuts and burns. They often contain nerves and blood vessels. They generally develop after thermal or traumatic injury that involves the deep layers of the dermis and express high levels of TGF-β.
When a normal wound heals, the body produces new collagen fibers at a rate which balances the breakdown of old collagen. Hypertrophic scars are red and thick and may be itchy or painful. They do not extend beyond the boundary of the original wound, but may continue to thicken for up to six months. They usually improve over the one or two years, but may cause distress due to their appearance or the intensity of the itching; they can also restrict movement if they are located close to a joint.
Some people have an inherited tendency to this type of scarring'' wikipedia

The 3rd January was both the one year anniversary of me standing up and my first driving lesson since before the crash. I may need to have an automatic but I am determined to learn and pass in a manual if possible because I feel it is an advantage to be able to drive a manual if needs be. Having a car would be so helpful to me as I can't walk anywhere but could get out more independently if I could drive to my destination. It's definitely very emotionally hard being in a car and I am filled with panic but I'm focusing in how much it would aid my recovery.

The 8th January was my five year anniversary with Joss! I intend to do a full post at some point about everything he has done for me but we'll save that for a really soppy day! 

For the 16th and 17th January I was in London with mom to see a ballet as her 50th birthday present from me! I used my wheelchair for 90% of the trip but was able to use sticks to get on and off escalators without which we wouldn't have been able to use the tube at all. My barely 5ft tall mom had to carry my wheelchair while I clung on to the escalators and you would be shocked at how few people offered to help! Just being able to do that though is massive progress for me. The ballet was called La Corsaire and was a sort of pirate love story, I enjoyed it a lot more than I expected to be honest and the skill of the dancers is just amazing.

 

Last but certainly not least Joss had an operation on his shoulder! His first operation date was cancelled pretty much just before the anesthetist came to see him! And he ended up having it three weeks later on the 17th February (his 22nd birthday). He dislocated his collar bone in the crash which was treated with a sling and left but as it was causing him pain again 18 months on they basically pushed it back down and secured it into place with an artificial ligament. It was very painful and he wasn't allowed to drive for 5 weeks which was hard on both of us as I can't walk anywhere we were pretty stuck, but he's doing really well now and is back driving phew!

 

Now I hope this post wasn't too boring as I was trying to cram in too many things but I really am going to try and update this more often as i find it really helpful even just to myself. 

Thank you to everyone that ever reads this blog and to all the people who give me feedback on it. It gives me a place to express myself, see my progress and hopefully help any other people in the mean time. I absolutely love hearing from people and would love some comments if anyone has any :)

DRIVE SAFE, George xxx

OCT 2012 missing hospital - what the hell?! + How I shower etc with no downstairs bathroom...

  So I spent an agonizing 6 weeks in hospital desperate to get home only to get home and wish I was back there...
You're all probably thinking 'what the hell?' 'Is she crazy?' 'why would anyone want to be in hospital?!'. And it is extremely hard to explain but this blog is for me to keep an honest accurate account of this accident and my recovery and this is how I felt.
   Don't get me wrong before this I never sat at home thinking 'I really wish I could be in a horrible accident' and while I was in hospital I did not enjoy it. But I didn't really 'get' what being home would be like...I didn't come home to my bedroom I had to move into our front room. To get into the house I have to use ramps so I'm a prisoner in my own home unable to enter or leave alone. I cannot go upstairs at all. We have no downstairs bathroom, this means as a 19 year old female I have to have a commode chair in my fake bedroom which my mother has to empty. The ONLY reason I'm talking about every aspect of this horrific crash and it's results (even the most embarrassing and soul destroying) is because I think it's important for people to see how this driver's dangerous choices have ****** up my life. To shower I have to be taken to my parents friends house as they have a disabled access downstairs shower. This means I can only shower twice a week and involves packing two cars with me, my ramps, my wheelchair, my transfer board, commode chair (doubles as shower chair) and clothes, wash stuff and towels.   I have to be wheeled in up my ramps through their living room, mom puts the chair in the shower base puts my wheelchair next to it, I transfer with the board, she puts the towels ect. out and leaves. I shower as best I can and then text her to come and do my back dressing and reverse the procedure to go home. YES it's good that they can even offer me showers at their house but it's degrading and exhausting.

                                          Ramps to get in and out of my front door (can't use backdoor)

Anyway back to missing hospital. In the middle of October I had my first of many 'trauma reviews', these involved me going to the QE to have xrays and a meeting with my trauma/orthopedic/bones consultant. From  day 1 I have been completely strictly NO weight bearing this means I cannot put ANY weight through EITHER of my legs and must use a wheelchair and transfer boards. I was not even allowed to be rolled onto my right side because I had a big fracture in my hip socket. At this review I spent hours waiting for xray and then a meeting with one of 'Mrs bones consultants' registrars (doctors). Just to receive BAD news...still NO weight bearing at all. I have about 7 breaks in my pelvis and hip socket, and my left thigh was so badly snapped they had to remove a section before plating it and it had not began to grown back and the pelvic fractures had not begun to heal.

It was the last straw really. I felt SO depressed - why had this happened? why me? why didn't the grafts work? why did I have to use a fake toilet when the person who did this to me was fine? I missed hospital, at least in hospital I could use a toilet now I could transfer. I really bonded with some nurses which is a weird thing because you spend so much time with them and then just leave. And you know what people care more when you're in hospital, I had been inundated with cards and flowers (which sadly died before I got home!) and now I needed visitors more than ever now I was living in my own version of hell no-one really came round.

Monday 24th September - Graft review...

   Monday 24th September 2012 I woke up nervous! I was having my second skin graft reviewed today. The first one as I explained here, was traumatic first I was told it had taken then I was told it had completely failed, was massively infected and I needed another one as soon as the infection was gone. My burns consultant came to see me the day before and told me that if it had failed again I might be able to go home for a few days but then come back for another graft.
   Even though I had gone through ALL of this and one failed graft I still thought 'It wont be failed again, it wont happen to me'. I was given lots of morphine and sat up and my Vac dressing taken off, the curtain around my bed was shut and I had to wait for my consultant. My mom was texting me trying to find out what was happening, this was a BIG event. The outcome of this affected my future scarring, whether I could leave hospital, Operations...
   Eventually Mr V arrived with a bundle of medical students and junior doctors. A nurse came in to hold my hand while he looked at my back. It was silent for about a minute and then I heard him say 'where is the graft?..' I felt sick, completely devastated. After some discussion between themselves he asked them all to leave so he could speak to me privately. (something I really value in this consultant) He looked sad, he specifically chose to take over my care and knew what I'd been through and how much I wanted to go home. He explained that it had almost all failed again, I asked about having another but after a chat with my nurses and their colleagues they decided I had to stay in a few more days but we'd treat the burn with dressings soaked in beta-dine again and try and avoid another graft. I was happy because I wanted to go home and couldn't face another gruelling skin graft operation but it meant my scarring would be worse. It also meant that again my body had failed to accept its own skin, it may be silly but that in itself is hard to accept.
   Now I had to have the dreaded staples out again, I was going to attach a photo of a similar graft but thought you may prefer just the staple instruments for less gore!

I wont ramble on about how much having the staples out hurts again but Just think - big full thickness burn, open wound, actual staples being pulled out...The only benefit to having such a severe burn is that it has burnt through everything including nerves so I could only feel the ones around the edge being taken out not the ones imbedded in the burn!
DRIVE SAFE, George xxx

 

Thursday 20th September - Moved to a shared room...

     The day after my second skin graft Joss and my mom were in the room with me when the sister came in and told me they had to move me to a shared room. They packed my things, unplugged my bed and wheeled me up the corridor and into this big empty room. I was crying because every change was so frightening to me. I had been in my own room for 5 weeks since leaving the intensive care unit and I liked it that way. Not because I was loving that I got a private room, but it was an ordeal every time I had to use the bathroom - the toilet in this room was on the opposite side of the room next to the other bed which was currently empty. I liked that in my own room I could just lie with the tv on and pretend none of this was real, I couldn't even use my laptop on this ward and I was worried about having to make conversation with whoever shared the room. I'm not the kind of person who can just shut the bed curtain and ignore someone but I was too weak to talk lots. The one plus of this room was there were a few high up small windows! An ounce of natural light!
   From this day I had a new person in my room everyday and quite frankly it was horrible. I will give you an outline of the 'one-nighters' without giving any info about them just in case! They were all women as you can't mix sexes in the 2 bed bays.
Night 1 - Burnt hands from sticking them in a bonfire. Snored so loud the nurse was actually distressed that I would be unable to sleep. Discharged next morning.
Night 2 - Planned operation. TV unbearably loud all night. Discharged next morning.
Night 3 - Thrown aerosol on fire 'sunburnt' face. Discharged next morning.
Night 4 - NO-ONE!
Night 5 - Tea spilt in lap. Dramatic antics. Discharged next morning.
Night 6 - Lovely old lady who had falleed until I left.n down the stairs (only available bed). Stayed until I left

    I hate to seem un-caring but it was very very hard to have sympathy for the majority of these. They kicked up more fuss than I had the whole time about very minor injuries and moaned like they were being kept in a prison. I also had a few thoughtless comments about a singed fringe when I was lying there with half a shaved scalp.
   But they weren't to know that I wasn't in the same vote as them (minus the obvious wheelchair and wires) and I'm glad that I was a rare incident. It's a good thing the nurses were shocked at how long I'd been in hospital and when they read my notes because it means that it's not common to be hit, run over and dragged down a road and it's not common to receive such a multitude of injuries. I hate that all this happened to me but I'm genuinley glad that it doesn't happen to many people because it's horrific.
DRIVE SAFE, George xxx

First glimpse of the burn...(fairly graphic description)

     The last post and this one do not have dates in the title as they either span a period of time or I can't remember the exact day.
    The week they were desperatley trying to clear the infection from the failed skin graft on my back was about 3 weeks after the crash. But I still hadn't really seen the extent of any of my external injuries and they were dressed or in places I couldn't see. I couldn't even turn my head enough to see my shoulder when they changed the dressings and obviously not my scalp, so I had NO idea what the situation with my back was really. Infact it hadn't even occured to me that they would all obviously become scars I would have forever.
    As I explained last post, the daily infection routine involved being put in the wet room and my burn undressed and washed. On this particular day my nurse left the room after washing the burn to find some more dressing packs. The water turned off and I felt instantly cold so I reached for the shower 'on' button. The shower was turned on and off by this large silver 'button' type thing. (I happened to find a picture of a bathroom on ward 412 which I was on...below)

     As I put my arm forward I caught a glimpse of my side in the silver. I thought it was someone else and looked behind me, obviously there was no-one there. The burn is from my left side on my waist/hip and follows round my back to my spine, it is rectangular as it was caused by my back becomming stuck and melted to the drivers exhaust. The only way I could describe it was 'zombie bite'. It wasn't just red, it was green, yellow, white, black, bubbled, mangled and oozing. It looked like it had been chewed . The burn was full thickness and so went through every layer which meant it also 'scooped' in like something really had just bitten a massive chunk out of me.
   I felt shocked, horrified, scared, alone, ugly and mostly like none of this was really happening.

Monday 3rd September...No more Catheter or PCA Plenty of infection...

 This post is quite personal, they all are but I think bodily functions are always more embarrassing to talk about! I'm writing it anyway because this blog is also a way of me keeping a diary because I keep forgetting to actually write in mine (Im using it to write these because we had to keep one for the solicitors from day one). Also I want to capture every detail because these sort of things don't cross peoples minds when they think of crashes, so if you don't want to know about me going to the toilet by all means don't read it haha
  3rd September over two weeks since the crash. I had spent all of this time with a 'urinary catheter' this was put in when I arrived as it was pretty obvious I wasnt going to be able to go to a toilet anytime soon. Also while I was in a coma I was being pumped with fluids so obviously your bladder still needs to empty but you cant go so the tube goes all the way into the urethra (don't worry I wont be attatching any photos! aha) and continually drains into a box/bag. This stayed in for so long because my injuries were so severe i could not even use a bed pan regularly. But after over two weeks it had to come out because of the high infection risk. I was terrified. I thought it takes a few nurses and a lot of pain to get from my bed onto the commode chair and if theyre busy they wont answer my buzzer quickly. Plus I hadn't felt the need or gone for a wee in over two weeks, I think I forgot that you don't suddenly need the loo then wet yourself...So anyway they took it out at midnight (not something you want to be woken up for) I don't know if it hurt going in as I was in a coma but it stung coming out! You have to pee within six hours or you need another put in and I went at 5.55am I like to live on the edge! Anyway it wasn't as bad as I thought, I had a commode (basically a chair with a hole in that you can fit a pot under to be used as a toilet) luckily while I was in hospital the commode chair actually fitted over the toilet in my 'en-suite' so once I was on it the nurse could just push me in and it was basically the same as using the toilet I just had to buzz for them to come and get me out. They also had to pull my bottoms up/down for the first week because I couldn't move to lift or adjust like you normally could. Actually it wasn't even embarrassing I was so weak, so vulnerable and in constant agony I really didn't care. I didn't care when I had to be bed bathed naked and rolled over so someone could wash my back and I didnt care that someone had to wipe my ass at 19. But think about that when you think 'I'll just speed through here I'm going to be late' or think about showing off in your car. I didnt care because I didnt have the ability to care at that point.
  My PCA (patient controlled analgesia-morphine) was also taken away. Funnily enough they don't really like you to be filling yourself with an opiate for more than two weeks! Luckily I was still allowed Oramorph (drinkable morphine) whenever I wanted it because jesus did I need it. Skin stapled to a huge burn on your back, countless broken bones burst liver and road burns really fucking hurt. Plus my donor site on the back of my thigh was really starting to hurt...when my nurse took the dressing off it was pretty clearly infected! With pseudomonas to be presise.
  This meant I had to have betadine soaked gauze and a new dressing put on it and more antibiotics! Betadine either is iodine or has iodine in it (I cant remember!) but that means its bright orange and soaks through everything!
DRIVE SAFE, George xxx

Heard this on the radio earlier today (14.4.13), somewhat perfect lyrics...