June/July '13 - Everyone's leaving, Pub's, Parking and Nasal reconstruction...

    On the 6th June I had another trauma/orthopedics/bone review. Nothing much to report from this one, had my Xrays and my left leg is still making steady progress after being stubborn and refusing to grow back at all for 5 months!

    At the beginning of June I was preparing for 5 days without my main man Joss! He was jetting off to Amsterdam for two of his friends 21st birthdays. I'm not going to lie I was extremely jealous and especially annoyed at the driver who caused all this and meant I couldn't go! I was apprehensive as the longest I haven't seen him for since the crash is two days, for company if nothing else - I get so lonely! It also happened to coincide with my parents going to the Lake district with my grandparents for a week so I was 'fending for myself' (my 17 year old brother was here too) for the first time in 10 months. But it went fine, I missed him but I managed not to cause myself any more injuries which is a plus!

My main man in Amsterdam!

      On the 22nd June I saw the upstairs in Joss's house for the first time in 10 months! Which meant I also saw his little Gecko 'Shisha' too! I took my crutches to his house so I could get upstairs using the same method as at home. 

An old photo of Shisha having a bath!

And one of his bearded dragon so he doesn't feel left out!

     For the last 10 months (minus time in hospital) I have been having to ask at bars and reception areas for the key to places disabled toilet. Not all of them have keys but a lot do and I didn't have my own! But I finally got one and so decided (now I don't have to ask to use the loo!) to venture to the pub on a Friday night for the first time since the crash on the 28th June. It didn't go as well as planned, it was really overwhelming being in such a busy pub and I felt really self conscious. Partly due to the wheelchair and partly due to my hair and general appearance I felt like I looked so different to the last time I was in there. It also didn't help that I still couldn't go to the loo alone because the door is SO heavy I wouldn't be able to get out. Why would you make a disabled toilet door the weight of an elephant?! And I didn't feel I could drink too much partly for fear of hurting my poor liver that has had enough of a rough year being burst! and because I felt too vulnerable in my chair. Anyway I shed a lot of tears on the way back to Joss's (my house is too far from town) but hopefully it will only get easier, now I've done the first time.

My new toilet key!

     On the 12th July I had my first operation since leaving hospital. One of my injuries was my nose, most obviously the left nostril was pretty much torn off (I've been told that it looked like a skeleton face where there's just a hole instead of a nose, which is hard to hear) luckily that was one of the first things addressed at hospital and was stitched back on before I was even found a bed in Intensive Care. THANK YOU whoever did that for me. Clearly my nose took a lot of force and this meant that my septum (the inside partition in the centre of your nose) was bent out of shape meaning I couldn't breathe from the left side. So on the 12th July that was finally reconstructed! It was really emotional being back in a gown in a bed being wheeled down by the nurse and it brought back so much. The worst part was coming round afterwards (I explained Here that I pulled myself out of a coma in ITU at 3am not knowing where I was unable to move which was the worst time of my life and I still have nightmares about it) I woke up after the operation while they were removing the tube from my throat which sent me straight back to that and in my sedated state I really freaked out. Once I was back on the ward I was ok though, my nose really hurt and I felt groggy but after 5 hours I was allowed to go home. I had packing in my nose and swelling so I couldn't breathe through my nose at all which as I happened to get it done during a heat wave was not great! I ended up sleeping sat up with a straw in my mouth so I didn't shut my mouth and wake myself up! And I couldn't taste a thing for almost two weeks which was not good! I also had to wear a really attractive bandage under my nose for 10 days to catch blood and protect against infection. Luckily it was all done internally so they made no incisions on the outside and my stitches will stay in about 6 weeks and then come out by themselves! Watch this space to see if the operation worked!  

Probably the worst photo ever taken of me - back on the ward

Other events of note in June/July...

• I started Yoga at home with an amazing instructor, lot's of sitting on a ball and breathing!
• I started psychotherapy/Counselling at a private practice thanks to my occupational health team.
• I dyed my hair for the first time since the crash and although it was distressing having half the amount of hair I felt better after it.
• Me and Joss had joint therapy sessions.
• I got MAD at the council after they rejected our appeal against a disabled parking charge (this will get it's very own post soon!)
• Joss's sister/one of my best friends Rhianna left for 6 weeks to go on a trip to central America :(
• The UK had a heatwave, like an actual heatwave with actual heat!

Picnic in the park with Naomi, Beckie and Ella!

DRIVE SAFE, George xxx

May '13 - Katie Piper, Sarah Millican and a Shower in my own house!...

    I'm going to start May off with another strange - 'wheelchair reaction' shall we call it? It was around the 4th May I think and me and Joss went to Kidderminster to meet some friends (It was a bit emotional actually because stupidly I didn't realise it was the first part of the route we took to get to and from the safari park that day and we had to park near the mcdonalds we stopped at on the way home) 
Anyway we went for a drink and as we left the pub and headed down the high street at around 6pm we encountered a rather drunk lady. I could tell she was going to come over and she did. She kept looking at me, and after complimenting Joss on his shorts...Decided to turn on a very patronising voice and pull a sad face and ask why I was in a wheelchair. I told her very briefly about the crash and hoped she would leave. Instead she said 'oh my god' a lot and then decided to hold my hand...so as we were trying to leave and Joss was pushing me she was walking along side holding my hand eventually she stopped and said a few more 'oh my god' 'how awful' type things and then hugged me so tight I actually thought my jaw might crack again!  
If anyone who reads this has any funny/strange wheelchair or disability reactions please comment or send them me on twitter I would love to read them! https://twitter.com/1992_georgia

   On the 9th May I went upstairs in my house for the first time in over 8 months! I have been having physiotherapy since I was in hospital and it has progressed from using a machine to bend my leg at the very beginning to finally being able to begin weight-bearing 5 months later. 3 months on from that I can finally begin to use steps/stairs. To do this we have had to have railings and bars built in our home to allow me to get up them. Now they are built, I use one crutch and have the other arm holding the left hand rail and using right foot first can get up one step at a time. I'm not allowed to do it without someone following me with their arms braced across the rails in case I fall because I'm pretty unsteady on my feet! It was very weird seeing upstairs again, my bedroom door is directly ahead at the top of the stairs and is covered in so many pictures/stickers/leaflets (even a first class train head rest cover..) from when I was about 16 it was like looking at someone else's door. I couldn't face going into my room just yet I think that will be quite hard.

Here I am at the top of the stairs! 

   On May 15th I had my FIRST shower in my own home for 8 months 3 weeks and 5 days. The last time I was in there I was getting ready for the safari park. We originally thought I'd be able to get upstairs in November 2012 so to finally be allowed 6 months later than that was a big achievement! I got some great equipment from my occupational therapist so as long as someone helps me up and downstairs I can shower independently!

My shower equipment in my own bathroom!

    A while ago I was contacted by the Katie Piper Foundation (KPF) after speaking to another girl online who was left with bad scarring after a road accident. I was invited by the KPF to begin attending their events which I was really happy about because I'm not sure how to deal with my burns and scars emotionally. On the 19th May I attended my first event which was a pamper day at a very nice salon in Birmingham. I had my hair trimmed to sort out any split ends which was great because I'm very self concious of the fact that it is so uneven and there is a big scar in the middle of one side so to have someone do it in that environment made me feel more at ease. I had my make up done by a fantastic volunteer who was really funny and you didn't feel like you were there because you had something horrible happen. Katie piper herself painted my nails and we were given amazing goody bags with scar treatment and sun cream as well as really fancy make up for free! It was also the first time in exactly 9 months I've done anything remotely independent as Joss was able to just drop me off and then pick me up at the end. 

   On the 23rd May me and Joss took a little 'road trip' to Manchester together. One of my birthday presents this year was Sarah Millican's DVD and I decided I really wanted to see her live. I was trying to persuade Joss to take me to her 2013/2014 tour when I received an email with links to tickets for her warm up gigs! £7 to see her and 3 other comedians in small venues, yes please! I opted for Manchester as it was the closest and told Joss I'd buy his ticket if he got the car for the weekend which he did. So on the first day we found our hotel (good old premier inn) and got something to eat after wheeling round Manchester city centre before going to see her at the Frog and Bucket. It was a great place, a small bar/venue but they were great about the wheelchair and we had a really good table with a good view but not in the way. It was a brilliant night and the acts were hilarious. The next day we went to the War Museum and had a peek at the TV studios before we headed back. All in all a very good weekend! In fact a pretty good month!

DRIVE SAFE, George xxx

MARCH & APRIL '13 - Spain, Jewellery making and flying with a wheelchair...

      So I'm going to try my very best not to ramble on too much about any of the things I got up to in March and April, because looking back at my diary there seem to be quite a few and I'm sure you don't want to be reading a dissertation length blog post!
 
  On March 15th I got another exciting parcel in the post. I love getting parcels, It doesn't matter what's in them there is something exciting about receiving a parcel.. This particular parcel was from my occupational therapist and was a wheelchair tray. Something I never thought I would be excited to get but hey that's what my life has become! And I can now go to the kitchen make something to eat or drink and transport it back to my room myself. Something I haven't been able to do for 7 months now!...

My snazzy new wheelchair tray and celebratory hot liquid transportation (soup)

       On March 23rd I decided to start a blog! This blog to be precise, I kept getting annoyed at myself 1. for forgetting to write in my diary to keep up to date and 2. For never being able to tell people how I really am. So finally 7 months on it clicked that maybe I could have a blog? Maybe no-one would read it but if they did want to know really what happened, and how it has affected me they could. I decided to start from the beginning which is why you are currently reading 'March/April '13' written in August. I am desperately trying to get up to date so I can really use it as a place to express what's going on as it happens!

A little snap of me test running wig/hat combinations in March

     On the 29th March I went to Spain! Joss's parents needed to go to look at houses and after the crash decided to take me as well which I was very grateful for. If nothing else Spain gave me a week of using a real toilet and using a shower inside my own 'house' for the first time in over 7 months. The actual getting there and back was a bit of a hassle, we had to go to the plane way earlier than everyone else and use this weird lift which was in a truck to get onto the plane. Then I had to use an aisle chair and literally be dragged to my seat and then reverse that to get off the plane. Sadly we didn't get on first and the plane was full of people as I was being dragged to my seat. I also have no idea what they would of suggested if I needed the toilet on the plane as they left the aisle seat at the airport both ways luckily it was a relatively short flight! 

  Our villa was nice, however the woman had informed Joss's parents that it was totally wheelchair friendly and had no steps...when we arrived there were 2 steps to get onto the patio/pool area and then another 3 to get into the villa! Which meant a combination of being lifted in and out and practicing using my crutches. It also meant that as back home I couldn't go in or outside without help. 
   The shower was massive and although it was frankly amazing to have a shower in my 'home' and be able to have one whenever I liked Joss had to help me. We acquired a chair to use as my shower chair and I would wheel up to the shower then Joss would stand me up and half carry me to the other chair where I would get undressed then he would go away and come back in 20 minutes and reverse the procedure so I could get dressed in my wheelchair. Now yes everyone gets undressed in front of their boyfriends/girlfriends but at 20 it's not exactly fun being carried in and out of a shower by them!
   I could get in the pool too which was brilliant and my physiotherapist was very happy about that as it's brilliant exercise when you can't walk. It was absolutely freezing in the pool but I had to make the most of being able to stand up un-aided in the water (how cool is that!).

   One thing I never really thought about before this is, if you have scars especially burns you have to be extremely careful in the sun. You have to use really high factor sun cream and keep them covered. The sun is really damaging to skin and more so to scars it can not only make them look worse but if you have skin grafts and burns you are at a higher risk of skin cancer - great! So I carried baby sun cream everywhere in spain.

This is an aisle chair used to get me to my seat on the plane.

Sort of photo of our villa/Rhianna

Tackling the stairs with Joss!

Little example of a piece I have created

         Lastly on April 24th I was put down for another operation. I'm sure I have mentioned before that my left nostril was pretty much ripped off in the collision and some amazing nurse stitched it back on whilst I was in a coma! I haven't been able to breathe through the left nostril since I woke up in ITU but as with a few other things it wasn't really looked into at the time because there were so many other things going on that could of killed or permanently disabled me. But eventually after being referred to an ENT consultant I was told the septum was deviated (if you felt inside it felt like a wiggly line) so now I'm down to have that fixed! Which I am very glad about because aside from the whole 'not being able to breathe properly thing' it has caused me to get sinusitis almost once a month which is pretty miserable! 


Oh one very last thing, I'll leave you with a Facebook status of mine from the 25th April which looking back I can find funny! -
 ''Having to wait in the same area as the sexual health people getting stared at and hearing ''whys she here she's in a wheelchair..'' ONE - what a narrow minded uneducated thing to say, TWO - actually NO I wasn't there for my weekly STI test like you love!''

DRIVE SAFE, George xxx

FEB '13 - Court case, Waiting list for operations and Joss's 21st...

   I'll skip past Valentine's Day and go straight to February 17th, Joss's 21st birthday. I felt pretty bad because he didn't get to do anything really good for it because I couldn't have joined in and he felt too bad to do anything that I would be missing out on. In the end he just had a night out in Cheltenham with some mates, which I was upset not to be able to go to but I felt more guilty that he couldn't do something better. On the actual day we went for a family meal at Jimmy Spices and although it was a good evening the food was not great haha. I tried to make up for him not doing anything too fun by getting him a surprise gift of a bungee jump. I was apprehensive about it before I even bought it because I am now scared of everything that could induce these kind of injuries...but he loved it so hopefully the cord wont snap! I didn't mention in the last post but January 8th was our 4 year anniversary, pretty impressive but it's safe to say I love him more than ever now and he has had to see me in a horrific state and thought I was dead and I don't think I'd of coped if it was the other way round. Here's a cheesy picture 1st is us in 2009 at Sonisphere festival and the 2nd at his sister Rhianna's birthday meal in October (leaning on my wheelchair!)

February 18th was the day of the court case. I'm not going to go into the legal stuff - what happened and the result - purely because I'm not sure if I am allowed. As this was the other driver's fault (that much has been completely clear from day 1) we have a claim - something that was started before I even woke up from my coma - and I don't want to affect that. I can tell you that it was one of the hardest days of my life. Joss had obviously met the person who did this as he was completely conscious at the scene but I hadn't. Apparently they did not act in a 'helpful way' shall we say at the scene and I didn't really want to face them 6 months on. We had to wait a long time at the court and I had to be briefed on the fire procedure and sign to say I was happy to be evacuated on a special stair chair in the event of a fire. This heightened my emotions as if it wasn't for THEIR actions I wouldn't be using a chair at all. I cried silently pretty much from when we arrived, Joss's parent's went up stairs while we waited for the lift and came back looking worried to say 'they' were up there. My heart felt like it flew into my mouth, I felt absolute horror and panic. I didn't want to see them. I didn't want to be there. I looked away and they pushed me straight to the furthest waiting area around a corner. After a long wait we were called into quite a small court room where I saw them for the first time. I was parked at the back feeling very fragile in my wheelchair my head wound and remains of my hair wrapped up in a scarf. They tried to speak to me while the court adjourned but it was too distressing and the fact they didn't even know my name said it all to me. Joss had decided to write them a letter explaining all my injuries and what I had endured and was still enduring because if the punishment wasn't going to be severe we needed them to know what they had actually done. It was extremely hard and I'm so thankful I had Joss there with me to hold me and understand that the fact the court case was done didn't mean anything was over for me. I'm not going to go into that anymore because I will never shut up...
 
   By some luck that same evening I was going to see Circus of Horrors with Joss's family for his 21st birthday. We saw it at the Birmingham new alexandra theatre, and I have to say the disabled access was ok. I was however quite annoyed that as we were let in the side entrance the attendant decided to ask me if I needed the toilet before I went in, in front of everyone. I'm sorry but... really?! If you want to let me know where the disabled toilet is just say 'Just to let you know our disabled toilet is down there'...but anyway the show was AMAZING. Some of the acts were just insane, swallowing swords, hanging by their hair, acrobatics mid air! The only problem was that because we had to sit in the disabled area the balcony above blocked our view of some of the aerial acts but all in all it was a good end to what started as a very horrible day.
 

   I had an appointment with my burn's consultant on February 26th where I was put on the list for an operation on my scalp. After I was driven over I was dragged over 10 metres at which point my helmet was partly smashed and ripped of my head removing a large chunk of my chin. My head along with the rest of me was dragged along the road resulting in a large part of the right side of my scalp was completely rubbed/scraped/torn off. As well as hair being cut and shaved off around it this has left me with a big scar on my head about 2.5 inches wide and 4 inches long which hair will never grow through. So they essentially want to cut that out, pull it together and staple it in place. This will leave a scar but will be a big improvement on what I have now. My only worries are about it being too tight and them having to use expansion which is where they place a balloon under the skin and fill it with saline solution over a long period of time to stretch the skin. But we'll take it as it comes! 

I'll leave this post with a few pictures from February...

My fab nails done by my friend Naomi!

A little mini visitor with my friend Beckie!

DRIVE SAFE, George xxx