APRIL/MAY 2014

    So the last month and a bit hasn't been very interesting -what's new? I hear you say - but I haven't even had many hospital appointments other than physiotherapy #boring
  Medically I got my second scalp operation booked in for the 17th July the first part of which I had back in October, you can read about that here. I had a few medical reports for the solicitors which aren't very fun but are necessary for our claim. And I continue making steady progress in my weekly hour long physiotherapy sessions which I have now been having for 20 months (since I left hospital)! I still use the wheelchair for longer journeys but am using two walking sticks to make shorter distances. I'm having some nerve pain in some of my scars most noticeably in the large burn on my back which causes me to jolt but we're just seeing how that goes for now.
 
    In other news it was my dog sargent's 11th birthday on April 13th (think I'm scraping the barrel for this post...) We adopted him after he was fired by my grandparents 5 years ago, he was one of their guide dogs (both my grandparents are blind) but he kept making mistakes and was scared to go out with them so he was pretty useless...

  It was my best friend of 10/11 years Beckie's 21st birthday and with the help of some of my mass of equipment (below) I was able to go out for a few drinks for it! I'm definitely not at clubbing level yet but I haven't even been able to do that since the crash!

Quite the collection!

The cake I knocked up for her

Me and Beckie about 2 years before the crash

   

    Lastly, my lovely boyfriend (and 'carer') jetted off to Holland a week ago on the 19th May (well slowly went there via coach..) he's gone with two friends to travel through a few places in Europe for a month. He really deserved this break after all the sacrifices he has made and continues to make for me over the last almost two years because of this crash. However as well as all the lovey dovey 'I miss him' stuff, he is my main source of leaving the house! I see my two fantastic best friends once a week and have physiotherapy and a driving lesson once a week but other than that I'm pretty stuck. I think I've made plenty of comments on how bored and stuck inside I always am but it's still rubbish! I think it's hard for people to understand what it's like being bed/house bound and not able to go out alone (I certainly wouldn't of before the crash) and I'm lucky that one day despite life long problems I will be more independent than this. But I do literally spend days on end finding rubbish to watch to fill the hours and it's very lonely. I have watched every episode of the only way is essex twice in the last two years..I'm not even going to list any others haha I regain my street cred watching Breaking Bad and Dexter with Joss!
Moaning aside I am going away for a few days in a few weeks and Joss will be back in just over 3 weeks!

Hopefully I will have slightly more interesting news in the next post, thank you for the few comments I've had lately I do LOVE getting comments :)
DRIVE SAFE, George xxx

March 2014 - Glastonbury & Harry Potter Studio Tour...

    In the last couple of weeks I have had two exciting trips out woohoo!
On the 20th March me and my lovely mom took a trip to Glastonbury in Somerset. This was especially special as it is a trip we had planned almost 2 years ago and we were due to go about 3 days after the crash. My mom said it's one of the first things I remembered when I was in intensive care after waking up from my coma and I kept getting very upset about it. I think in that sort of situation you can't possibly compute the magnitude of what's happened and what it might mean so you think of the little things like not being able to go to Glastonbury! (I think I was even upset I'd miss a hospital appointment I'd got booked by my gp..) Ironically we originally wanted to go as we hardly saw each other with her working shifts as a midwife and me being a general 19 year old with a work and social life and we have now spent the best part of 20 months together haha. We only went to the town to look at the shops and stuff but it was really nice! I used my wheelchair mostly but it's lovely to now be able to stand up and look around a shop using my stick!

The pub we had lunch in had 5 cats! Better than the 'cat cafe' we paid to visit in Budapest!  

   And on Wednesday Joss took me to the Harry Potter studios! It was my Christmas present from him but we waited until his operation was done and settled before we went. It was SO good! I'm definitely not a mad Harry Potter fan, I didn't used to queue up for the books or have to be at the first showing of each film but I have seen them all and I do love the films. (In fact Joss and I watched them all again when I came home from hospital) I think the fact the first film came out when I was 9 and the last when I was 18 means we sort of grew up with it and I admit I was a bit sad when the last film ended..
I think turning the studios into a tour was a brilliant idea and it is so well done. The sets have so much detail that they don't really feel like sets and it's a great opportunity to appreciate just how many people were part of putting the films together, and the amount of talent is insane! I definitely recommend a visit and if you do have a 'butter beer' I suggest sharing one, me and Joss did and half a cup was definitely enough! I'll just put a few of the many photo's I took up or you might be here a while...

DRIVE SAFE, George xxx

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Major catchup!...

I always sit down to update this blog and then end up not writing anything so now I have loads of things to write about! 
I'm going to try and keep each thing short and sweet and rambling to a minimum..

On the 5th December (was that really almost 4 months ago?!) I jetted off to Budapest with Joss and two close friends for another 21st birthday celebration, I mean if you can't go clubbing you have to have two trips right? It was a fantastic few days but I did struggle with the wheelchair a little and had some low times thinking about how different my 21st should of been. Although the hostel was pretty wheelchair friendly and I managed to get to the bathroom there with my crutches or sticks. All in all it was great to get away with some of my biggest supports and best friends.

The trusty chair in it's 3rd country!

 

On the 23rd December I moved back up to my old upstairs bedroom after 16 months sleeping in the bedroom my parents had to make for me in our front room, in order for me to come home from hospital. I started off in that room barely able to transfer from my wheelchair into my bed with a board and with a commode in there, but it was still hard moving back upstairs. After I first went back into my room I decided to have it painted a different colour to make it easier but it still didn't feel like 'my room'. I think it's because I feel so different from the 'old' me now and I probably subconsciously thought everything would be back to normal when I went back. I'm slowly accepting I won't be exactly the same ever again, no part of my life will be the same but that doesn't have to be a bad thing. 

On Christmas eve I had an appointment with my burns and plastics consultant to review my scalp surgery (read about that here), at the review it was decided that I will have the surgery repeated to improve the size further and hopefully that will help with the pain and pulling of the hair around it. I also had some painful steroid injections into part of my shoulder scars that are hypertrophic in the hope it will break down some of the tissue and help with the pain. Most of my scars are hypertrophic..

''A hypertrophic scar is a cutaneous condition characterized by deposits of excessive amounts of collagen which gives rise to a raised scar, but not to the degree observed with keloids.^[1] Like keloids, they form most often at the sites of pimples, body piercings, cuts and burns. They often contain nerves and blood vessels. They generally develop after thermal or traumatic injury that involves the deep layers of the dermis and express high levels of TGF-β.
When a normal wound heals, the body produces new collagen fibers at a rate which balances the breakdown of old collagen. Hypertrophic scars are red and thick and may be itchy or painful. They do not extend beyond the boundary of the original wound, but may continue to thicken for up to six months. They usually improve over the one or two years, but may cause distress due to their appearance or the intensity of the itching; they can also restrict movement if they are located close to a joint.
Some people have an inherited tendency to this type of scarring'' wikipedia

The 3rd January was both the one year anniversary of me standing up and my first driving lesson since before the crash. I may need to have an automatic but I am determined to learn and pass in a manual if possible because I feel it is an advantage to be able to drive a manual if needs be. Having a car would be so helpful to me as I can't walk anywhere but could get out more independently if I could drive to my destination. It's definitely very emotionally hard being in a car and I am filled with panic but I'm focusing in how much it would aid my recovery.

The 8th January was my five year anniversary with Joss! I intend to do a full post at some point about everything he has done for me but we'll save that for a really soppy day! 

For the 16th and 17th January I was in London with mom to see a ballet as her 50th birthday present from me! I used my wheelchair for 90% of the trip but was able to use sticks to get on and off escalators without which we wouldn't have been able to use the tube at all. My barely 5ft tall mom had to carry my wheelchair while I clung on to the escalators and you would be shocked at how few people offered to help! Just being able to do that though is massive progress for me. The ballet was called La Corsaire and was a sort of pirate love story, I enjoyed it a lot more than I expected to be honest and the skill of the dancers is just amazing.

 

Last but certainly not least Joss had an operation on his shoulder! His first operation date was cancelled pretty much just before the anesthetist came to see him! And he ended up having it three weeks later on the 17th February (his 22nd birthday). He dislocated his collar bone in the crash which was treated with a sling and left but as it was causing him pain again 18 months on they basically pushed it back down and secured it into place with an artificial ligament. It was very painful and he wasn't allowed to drive for 5 weeks which was hard on both of us as I can't walk anywhere we were pretty stuck, but he's doing really well now and is back driving phew!

 

Now I hope this post wasn't too boring as I was trying to cram in too many things but I really am going to try and update this more often as i find it really helpful even just to myself. 

Thank you to everyone that ever reads this blog and to all the people who give me feedback on it. It gives me a place to express myself, see my progress and hopefully help any other people in the mean time. I absolutely love hearing from people and would love some comments if anyone has any :)

DRIVE SAFE, George xxx

Wasting my young years

I will do a new update post soon I promise as I've had nearly 10,000 views I must have some readers?!

I heard this tonight and it got to me I just want to get my old life back! I know I will achieve a new life with so much more perspective I just want to feel like a normal 21 year old for a bit!

Scalp Operation and 21st birthday celebrations!

   I have neglected this blog for a whole month and although I only have two official followers I have had over 8500 views (If you read this blog please give me a follow!) so I apologise for that!

  On October 17th I had an operation on my scalp. You can see a full list of my injuries here but as I was run over and dragged beneath the car my helmet was broken and ripped upwards meaning my head was dragged along the tarmac.  

*Please don't anyone read this and think 'helmets are pointless then' because the car tyres drove into/over my skull before I was dragged and I don't need to go into details of what would of happened to my skull/brain if I wasn't wearing my helmet. That is also why you need to take great care of your helmet and always wear one that fits you perfectly and one that you can be certain has never been dropped.*
Obviously this left me with a large area on the right side of my scalp that was missing skin this led to half of my hair being cut and shaved to prevent infection. With intensive treatment and care the area healed over with scar tissue covering my skull up again nicely! While the outer area of scar tissue began pushing new hairs through, the deepest central area was essentially pure scar tissue from the skull up so it stayed bald and numb. My fantastic burns and plastics consultants put a plan together to remove as much of the scar as possible and try and close it up to give me a thinner scar and therefore less obvious bald patch. Too avoid expansion surgery (insertion of a balloon under the skin which is regularly filled with saline to make extra skin) they opted to just pull the two sides together after the middle was cut out meaning it could be too tight and may take more than one operation.
As always I was mostly nervous about the waking up from the anesthetic, I wrote here that I pulled myself out of the coma and as you can imagine it was an extremely terrifying experience that left me scared of falling asleep for a while and each operation is a reminder of that. The operation went ok though and although I needed a drip and some extra oxygen for a while when I woke up I was allowed home the same day. This one was very painful and I so tight I genuinely couldn't lift my right eyebrow for two weeks. Oh and I wasn't allowed to wash my hair for two weeks! I wont know until my follow up on Christmas eve whether they need to do another operation on it and I can't see it myself in a mirror but I have some photo's taken by Joss which I will include, to me they are not very gross but feel free to skip past them!

The morning of the operation (yes those are white frazzled hairs trying to grow out of it)

2 weeks after looking smaller about to get the stitches out (surgical gel not grease!)

22nd of November was my 21st birthday! My 20th birthday wasn't great and although I still couldn't go on a wild night out or anything I have come a long way since then and wanted it to be special. With some help from Joss and some friends I decided to plan a weekend away, well that soon became two weekends away with two different sets of friends! I settled on Devon for 3 nights on my actual birthday with 11 friends and Budapest two weeks later with Joss and two other close friends. I have just come back from Devon and it was brilliant! I worked my arse off in physio for the last few months which really paid off with me being able to use crutches in the house and get out of my chair and walk a distance when we went to the beach, I was so happy! I did actually have to dose up on codeine and have a nap when we got back from the beach but who cares it was brilliant!

The day before my birthday three of my best friends, Naomi, Beckie and Aaron took me to TGI Fridays in Birmingham and then to the German market and it was genuinley probably the best night I've had since the crash. They made me feel so special and made such an effort with balloons, confetti, hand made cards and a birthday cake (which involved a rather embarrassing song from the staff...) The German market was amazing too and somehow I managed to attract a polish man who took a liking to me and went off and brought me a birthday present!

I spent the morning of my birthday with my mom before Joss picked me up for the 3 hour drive to Devon. My mom is absolutely incredible she always has been and she has literally done everything for me since the crash. She had to be told I would probably die, she sat with me while I was in a coma, she rushed to me when I woke up from it at 3am, she sat in a chair next to my bed all day and night every night for the first week, she got to me at 10am every morning stayed until 2pm when Joss came drove home and came all the way back at 6pm to sit with me until 8am every single day I was in hospital and when I came home she washed me, emptied my commode and took me shouting at her when I couldn't cope anymore. She went to the effort of getting me 21 presents for my 21st birthday, not all big fancy things but lovely stuff that made me smile. One of them was even an elephant she had knitted (elephants are my favourite animal) despite only having knitted a few things before and having the kitten unravel it twice!
I hope everyone knows how grateful I am for making this birthday so special and I cannot wait for the next installment in Budapest!!!

DRIVE SAFE, George xxx

''How are you?'' - Physical Update...

   Whenever I see people or bump into someone on one of my rare outings they usually ask how I am, nice right? Well yes it is nice but it's not that easy to answer. Chances are I'll just say 'fine' or 'OK thanks' or if I really am in a very bad mood maybe even 'crap' but then usually followed by 'but I'll be fine' people don't want to here things aren't going well they want you to say you're doing great and then they feel better and get on with their day and if its a quick stop and chat in the street they certainly don't need me rambling on about my recovery. I thought this would be a better place to try and explain 'how I am' with a quick (maybe not that quick) physical update.

14 MONTHS ON...

Bones - My last Xrays show that my Pelvis is knitting together well as is my spine and looking at my first Xrays compared to that one is a massive change. The first ones frankly are a mess there are a mass of breaks and the pubic rami (inner pelvic ring) is totally snapped and distorted. I still get a lot of pain in my pelvis but I'm told I always will and there is a chance I'll need a hip replacement when I'm old enough because I broke my right hip socket.
My Femur (thigh) is finally going in the right direction but 14 months on it still hasn't fully grown back. Basically when I arrived on that fateful day a large portion of my thigh bone had literally been ground to nothing so I was left with a bit of bone coming down from my hip socket and a bit coming up from my knee with a big gap in the middle (cringe I know) so I endured a massive operation whilst still in a coma and had a plate and screws put in which will stay in forever and is the length of my whole thigh.
My wrist, shoulder and jaw are doing well I still get a few niggles here and there but they healed well.

Organs - My lungs and liver have healed very well and fingers crossed they wont cause me too many problems in the future.

Face - My Septoplasty operation has made some difference however it has not totally fixed my septum so I still can't breathe fully through the left side of my nose and it may well collapse back. The person who stitched my left nostril back on deserves a medal because the scar is so neat. My bottom lip reattached itself to my gums now I have a scar running across my bottom gums which can be a nuisance when eating certain foods.

Burns/Scars - Obviously my worst scar is the exhaust burn on my back which I endured skin grafts on but I also have scars from the severe road/friction burns to my hip, shoulder and scalp, the plate in my thigh, the stitching on my nose and the lung drain holes on my sides. Most of them are hypertrophic which means the scar becomes over granulated and raised. They itch a lot and hurt in the cold. The scar on my scalp which caused me to have half of my head shaved is being operated on tomorrow...I'm very scared about that. The full thickness burn to my back is by far the biggest scar it pulls the skin around it in and is very tight around my waist. It itches and is very sore if pressure is applied. I still have to massage all of my scars with different creams multiple times a day and still have a compression garment. I don't know how I will deal with my scars when I wear the clothes I like and they are on show..

Walking - I often get asked how far I can walk and how long until I can use a walking stick etc. Basically I am now starting to use crutches around the house and have used them to get into a restaurant once. It's really hard to explain because I don't know how long it will take. I still use the wheelchair to go out to placed and I'm going away for my 21st in December and have been told I will need to take my wheelchair. At some point I will use crutches out and a tripod walking stick and a normal walking stick at home then those out and one stick at home then one stick for everything. But all of that seems far away. I have physio every week which I enjoy but if I push myself I get pain in my back, hips, leg and knee so it's tough.

If you find any of this remotely interesting and want to know anything else feel free to ask :)

DRIVESAFE, George xxx